The significance of public attitudes

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Key global bioethics guidelines get ‘dramatic’ update Oct. 29, 2024, 11:51 PM ET (Science | AAAS)

Since its inception the field of bioethics has been populated by specialists from a number of different disciplines, including primarily philosophers, lawyers, and theologians. In the last decade of the 20th century, however, the contributions of social scientists to bioethical research became particularly important. Work of this type involved surveys of public attitudes to advances in the life sciences, including xenotransplantation and genetic modification. Programs for facilitating public understanding of these advances were developed, leading to the establishment of “public understanding” and later “public engagement,” or “participation,” as distinct topics of study in bioethics and the social sciences.

These topics have been important from both a practical and a theoretical point of view. In order to formulate sound public policies on issues such as human cloning, for example, it is important to be able to predict how such technology, were it to become widely available, would affect the public’s decision making about reproduction. At the same time, research on public attitudes may reveal that some bioethical principles, such as the principle of autonomy, may not be suitable for some societies, particularly those with cultures that are not particularly individualistic. For these societies, something like a “principle of solidarity” may have greater relevance. Nevertheless, it would be a mistake to assume that one of these principles must apply to the exclusion of the other—it is possible for a society to value both autonomy and solidarity.

Policy making

The importance of the social and legal issues addressed in bioethics is reflected in the large number of national and international bodies established to advise governments on appropriate public policy. At the national level, several countries have set up bioethics councils or commissions, including the President’s Council on Bioethics in the United States, the Det Etiske Råd (Danish Council of Ethics) in Denmark, and the Comité Consultatif National d’Ethique (National Consultative Bioethics Committee) in France. Elsewhere, as in the United Kingdom, there are a variety of different bodies that consider bioethical issues. The Nuffield Council on Bioethics has taken on the role of a national bioethics committee to a certain extent, but there also are national bodies that deal with specific fields, such as the Human Genetics Commission.

Several international organizations also are involved in policy making on bioethical issues. The United Nations Educational, Scientific and Cultural Organization (UNESCO), for example, has an International Bioethics Committee; the Human Genome Organisation has an Ethics Committee; and the Council of Europe has issued the Convention on Human Rights and Biomedicine. The proliferation of such committees is evidence of the increasing political influence of the work performed by bioethicists. Indeed, acquaintance with developments in bioethics arguably is becoming an important aspect of national and global citizenship. At the same time, however, the role of bioethical experts on advisory or decision-making bodies has itself become a topic of study in bioethics.

Global bioethics

The field of bioethics has grown most rapidly in North America, Australia and New Zealand, and Europe. Cross-cultural discussion also has expanded and in 1992 led to the establishment of the International Association of Bioethics. A significant discussion under way at the start of the 21st century concerned the possibility of a “global” bioethics that would be capable of encompassing the values and cultural traditions of non-Western societies. Some bioethicists maintained that a global bioethics could be founded on the four-principles approach, in view of its apparent compatibility with widely differing ethical theories and worldviews. Others argued to the contrary that the four principles are not an appropriate basis for a global bioethics because at least some of them—in particular the principle of autonomy—reflect peculiarly Western values. Although the issue remains unresolved, the field as a whole continues to grow in sophistication. At the same time, the increasing pace of technological advances in medicine and the life sciences demands that bioethicists continually rethink the basic assumptions of their field and reflect carefully on their own methodologies.

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